The Australian Juvenile Arthritis Registry (AJAR) has reached an important milestone, with more than 1,000 children and young people now enrolled nationwide. This marks a major step toward building the first national picture of juvenile arthritis and other childhood-onset rheumatic diseases in Australia.
Each participant makes a vital contribution to improving understanding, care and outcomes for children and young people living with these conditions.
Officially launched at Australian Parliament House in March 2023, AJAR has seen rapid enrolment over its first three years of operation. AJAR is supported by the A3BC, which provides data infrastructure and project coordination in partnership with Juvenile Arthritis Foundation Australia (JAFA) and the Australian Paediatric Rheumatology Group (APRG). Together, these partners aim to generate high-quality, nationally consistent data to inform better care, research and policy.
Reaching 1,000 participants reflects strong engagement from families and clinicians across Australia, and recognition of the value of this shared resource. Data from AJAR will help to:
- Describe the prevalence and diversity of juvenile arthritis in Australia
- Track health outcomes and care pathways over time
- Support research into better treatments and models of care
- Strengthen advocacy for children, young people and families
A3BC warmly thanks the children, young people, families, clinicians and partners who made this milestone possible. Enrolment remains open, and continued participation will be critical as AJAR grows, helping to lay the foundations for better outcomes for every child and young person living with juvenile arthritis in Australia.
If you haven’t enrolled in AJAR yet and are interested in finding out more, please see the FAQs and enrolment page here.
