Patients, health professionals and researchers working together towards curing arthritis and autoimmune diseases

Arthritis and autoimmune diseases are:


0 million
Australian children and adults live with arthritis, autoimmune or other musculoskeletal diseases
0+
types of arthritis and autoimmune disease with no known cures
0+ billion
annual health system costs for arthritis alone
0 billion
economic impact of autoimmune diseases in Australia each year

Participation involves:


Donating biological samples

including blood, saliva, discarded tissue from surgeries, faeces, urine

Enabling powerful 'omics' research

  • Genomics
  • Metabolomics
  • Microbiomics
  • Proteomics
  • Transcriptomics

Blood collections at 0, 6, 12 and 24 months – usually scheduled at the same time as your regular clinic blood tests

Completing online questionnaires

on your computer, tablet or phone

Collecting Information on Your

  • Demographics
  • Medical history & treatments
  • Quality of life
  • Lifestyle
  • Diet
  • Environments and exposures

Emailed to you every 6 – 12 months

Consenting to health data linkage

from clinics, hospitals, state and national datasets

Opt-in to data linkage to

  • National – Medicare Benefits Schedule
  • National – Pharmaceutical Benefits Scheme
  • National or state – cancer, death, immunisation records
  • State – admissions (emergency, inpatients), notifiable conditions etc.
  • Hospital/health district – electronic medical records
  • Patient-controlled – MyHealthRecord

For researchers and health professionals:


The A3BC is a national musculoskeletal and autoimmune disease biobanking network developing state-of-the-art data collection, data linkage, big data analytics and machine-learning capabilities for enabling and translating research discovery. It integrates a broad range of ‘omic’ (genomic, microbiomic etc), patient-reported (demographics, treatment, quality of life, diet etc), medical and administrative health data from people with arthritis and autoimmune disorders across Australia.

The A3BC seeks to:


  • Establish a national, best-practice, open-access (ethics-approved) biobank network to collect, process and store a broad range of high-quality biospecimens for multi-omic research;

  • Integrate multi-omic data with multiple national datasets, including patient-reported outcome/ experience data (Australian Rheumatology Association Database – ARAD), electronic medical records (~40 hospitals), Commonwealth data (i.e. MBS, PBS) and cancer/death registries;

  • Apply cutting-edge visualisation (dashboards), big-data analytics and machine-learning tools to interrogate these integrated datasets for potential associations/patterns of patient and population significance; and

  • Enable the translation of research discoveries into a comprehensive evidence base for improved musculoskeletal policy/practice across precision and preventive medicine – to give the right care, to the right patient, at the right time!

What is a Biobank?
Researcher FAQs
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